Wednesday, February 27, 2013

Rare Disease Day

Today is Rare Disease Day. Last year, I didn't even know Rare Disease Day existed, and today I feel connected to dozens of families to whom this day holds great importance. For every one family I've met, I know there are hundreds more.

Today, think of the TinySuperheroes we have introduced so far who are living with a Rare Disease: Super Brenna, Super Evan, Super Case, Super Wyatt, Super Elijah, and Super Esmé.

Rare Disease Day is an opportunity for us to show these special families that we care. It's an opportunity for us to join them in their campaign to raise awareness --> to gain more funding --> for more research --> for more answers. Today we are honored to introduce two more Extraordinary TinySuperheroes who are battling a Rare Disease: Super Casen & Super Mabel.

Both Super Casen and Super Mabel have Batten Disease (like Super Elijah). They are among only 1,200 people in the world currently living with this diagnosis. Scroll down to read their stories, send them some love on their Facebook pages, then share it with someone - the first step to raising awareness.

We know there are thousands of kids who are also living with a Rare Disease. We at TinySuperheroes would like to empower all of them with their very own cape - but we can't do it without your help. Today is the last day of our February promotion. If you purchase a cape today, we will match it by donating a cape to empower an Extraordinary TinySuperhero. And, in honor of Rare Disease Day, we will make sure that these donated capes go to Extraordinary TinySuperheroes who are fighting a Rare Disease. Please contact us through the link below if you have any questions or if we can help in any way.

Thank you for your support, and for helping us empower Extraordinary TinySuperheroes.

Super Puddles

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